So Thankful!

 

The surgery went great!

Dr. Dobbs said Cliff should have excellent results and he was easily able to perform the surgery!
Ross and I were finally called back to see Cliff in recovery.
He was crying and the nurse said the dreaded words…

“muscle spasms.”

She maxed him out on Morphine, Valium, Oxycodone, Fentanyl and Toradol then…

IMG_0662

we took a little stroll upstairs.

 

IMG_0663

 

Cliff was still having muscle spasms,
so pain control was called and his doctors increased his dosage of Valium.
He took it orally at about 1:00pm and it worked wonderful!

 

IMG_0665

 

Here are his little legs with the bandages!

He is trying to move his legs, but he is sore and he cries.

Which causes Ross and I to go into a frenzy of trying to figure out what will calm Cliff down. Seriously, it looks like a circus act and I am pretty sure if someone walked in on us in one of these “we will do anything to calm Cliff down moments” they would fall on the floor laughing at us.

 

IMG_0667

 

Cliff is eating and drinking!

 

IMG_0673

 

He even cracked a smile!

(can we say super doped up?!)

 

IMG_0672

 

What I am about to tell you next in SUPER crazy and was not on our agenda…

We are actually taking Cliff back to the hotel NOW!

He is doing so great that the doctor told us we could go ahead and get some good sleep tonight!

(The hotel is connected to the hospital should anything happen…heaven forbid!)

 

He will have PT tomorrow at 1:00pm!

Thank you all for your prayers and support!

God is soooooo good and we are so thankful!

The Wait…

 

 

This morning,
we took the long stroll once again from the hotel to the Children’s Hopsital.
But this time was different.

 

008

 

Today is “flat feet day!”

 

002

 

After Cliff snagged some cool Cars stickers,
it was time to head over to Same Day Surgery and check in.

 

018

 

Cliff was a little unsure at first,
but after he met his sweet nurse and the wonderful doctors who would be with him today his nerves seemed to melt away and his sweet smile returned.

 

IMG_0657

 

Dr. Dobbs came in and marked Cliff’s legs where his incisions will be.
Cliff thought he was silly for writing on him!
Dr. Dobbs checked Cliff’s legs out again and we decided that in order for Cliff to have the best outcome and the ability to walk with flat feet, his gastroc needed to be released too. The left leg is tighter than the right leg so Dr. Dobbs will adjust the intensity of the release accordingly so Cliff’s legs will be symmetrical in their ability to stretch. 

So, he is having a Bilateral Hamstring and Gastroc Release.

 

033

 

The highlight of Cliff’s morning was when the nurse gave Monks & Pups their own tags to match Cliff’s hospital bracelet.
They also listened to their heart beats and prepped them for surgery!

 

040

 

 

I was able to give Cliff some “happy juice” aka Versed, which REALLY made him loopy!

 

 

069

 

Of course I had to get some lovin’ before they took the boy back.
Handing your child over is the hardest part.

 

043

 

The anesthesiologists came in and took Cliff on a ride!

Cliff was very clam and did not cry at all.
He is so brave and so strong!

 

076

 

Now it’s time for Ross and I to wait…

 

079

 

Thank you all for your prayers and support!

We are so blessed to have all of you rally around us!

 

Today,
Ross and I are calm.
We know that God is with Cliff.
Our Lord is so wonderful.
We completely trust Him!

 

Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.
Philippians 4:6-7

Our day in St. Louis & Surgery Details!

 

After a lazy morning sipping coffee,
we decided to get dressed and hit the pavement again!

 

010

 

We were all craving the energy that St. Louis has to offer.
We needed it to distract us.
And it did not let us down!

 

011

 

We stopped at a little bistro and ate a fabulous lunch.
Sidewalk dining is becoming a favorite in this family.

 

038

 

Kisses.
So sweet.
I can never get enough.

 

070

 

After lunch,
we continued to get lost in the hustle and bustle of city life.

And before we knew it,
it was time to head over to see Dr. Dobbs, the Orthopedic Surgeon that will perform Cliff’s surgery tomorrow.

 

084

 

After the long walk through the never-ending crosswalks and hallways that connect our hotel to the hospital, we were finally in the “sacred area” known as Children’s Hospital.

2012-05-09

 

The Boy knows that this is the place where Dr Park “fixed his legs”
and I am pretty sure he loves these hallways just as much as Ross and I do.

 

105

 

The smell, the lighting, the smiles on children’s faces that we pass in the halls who are going through things at such a young age that most of us will never face in our lifetime all bring back the feeling of hope that was given to us here.

 

140

 

This is where we heard THOSE words that would change our outlook on Cliff’s future.

You know them,

“Cliff WILL walk independently!”

No one else has EVER said that to us and right here,

we were given the gift of hope.

In this place,
hope filled our hearts and there was no room left for despair.

 

133

 

After going over some information with Michelle, the nurse,
Dr. Dobbs came in the room and began to check Cliff out.

Cliff was calm and said “Hey man!” when Dr. Dobbs walked into the room.

Dr. Dobbs is comfortable, we felt as if we had known him our entire lives.

What can I say, The Boy knows an excellent surgeon when he sees one!

 

122

 

Dr. Dobbs said that Cliff’s heel cords had good range of motion and that they did not need lengthening done! He did tell us that Cliff will most likely need a heel cord release sometime in the future as he grows, but we will just monitor his range of motion as he gets bigger. He said that Cliff’s hamstrings were what is causing him to walk on his toes. So, in the morning (at 7:15am CST to be exact) he will make a very small incision on the backs of Cliff’s legs, above his knees and perform a Bilateral Hamstring Release.
We are thrilled because this is the most minimally invasive route possible and Cliff is the perfect candidate for this procedure!

 

126

 

Then after going over some post-op details,
Dr. Dobbs looked at us and said

“I am EXTREMEMLY optimistic that Cliff will walk independently…
and you should be too!”

I just about tackled him and plastered kisses all over his face right there.

Yep.

We heard THOSE words again,
and this time was just as sweet and wonderful as the first time.

 

All three of us laughed, giddy with excitement and were beaming with pure joy on the long walk back to the hotel.

God is so good!

 

IMG_0652

 

Cliff is very calm and even seems to be a little excited about tomorrow.

He informed us as dinner tonight that
“Dr. Park fixed my legs and Dr. Dobbs is going to help me walk with flat feet!”

 

IMG_0646

 

Please continue to pray for Cliff.

Please say a prayer for Dr. Dobbs and the wonderful medical team that will be in the operating room with Cliff tomorrow morning.

Please pray that Ross and I remain strong so that we can comfort Cliff.

 

 

 

"He performs wonders that cannot be fathomed, miracles that cannot be counted."

Job 9:10

Our day in St. Louis & Surgery Details!

 

After a lazy morning sipping coffee,
we decided to get dressed and hit the pavement again!

 

010

 

We were all craving the energy that St. Louis has to offer.
We needed it to distract us.
And it did not let us down!

 

011

 

We stopped at a little bistro and ate a fabulous lunch.
Sidewalk dining is becoming a favorite in this family.

 

038

 

Kisses.
So sweet.
I can never get enough.

 

070

 

After lunch,
we continued to get lost in the hustle and bustle of city life.

And before we knew it,
it was time to head over to see Dr. Dobbs, the Orthopedic Surgeon that will perform Cliff’s surgery tomorrow.

 

084

 

After the long walk through the never-ending crosswalks and hallways that connect our hotel to the hospital, we were finally in the “sacred area” known as Children’s Hospital.

2012-05-09

 

The Boy knows that this is the place where Dr Park “fixed his legs”
and I am pretty sure he loves these hallways just as much as Ross and I do.

 

105

 

The smell, the lighting, the smiles on children’s faces that we pass in the halls who are going through things at such a young age that most of us will never face in our lifetime all bring back the feeling of hope that was given to us here.

 

140

 

This is where we heard THOSE words that would change our outlook on Cliff’s future.

You know them,

“Cliff WILL walk independently!”

No one else has EVER said that to us and right here,

we were given the gift of hope.

In this place,
hope filled our hearts and there was no room left for despair.

 

133

 

After going over some information with Michelle, the nurse,
Dr. Dobbs came in the room and began to check Cliff out.

Cliff was calm and said “Hey man!” when Dr. Dobbs walked into the room.

Dr. Dobbs is comfortable, we felt as if we had known him our entire lives.

What can I say, The Boy knows an excellent surgeon when he sees one!

 

122

 

Dr. Dobbs said that Cliff’s heel cords had good range of motion and that they did not need lengthening done! He did tell us that Cliff will most likely need a heel cord release sometime in the future as he grows, but we will just monitor his range of motion as he gets bigger. He said that Cliff’s hamstrings were what is causing him to walk on his toes. So, in the morning (at 7:15am CST to be exact) he will make a very small incision on the backs of Cliff’s legs, above his knees and perform a Bilateral Hamstring Release.
We are thrilled because this is the most minimally invasive route possible and Cliff is the perfect candidate for this procedure!

 

126

 

Then after going over some post-op details,
Dr. Dobbs looked at us and said

“I am EXTREMEMLY optimistic that Cliff will walk independently…
and you should be too!”

I just about tackled him and plastered kisses all over his face right there.

Yep.

We heard THOSE words again,
and this time was just as sweet and wonderful as the first time.

 

Cliff is very calm and even seems to be a little excited about tomorrow.

He informed us as dinner tonight that
“Dr. Park fixed my legs and Dr. Dobbs is going to help me walk with flat feet!”

 

Please continue to pray for Cliff.

Please say a prayer for Dr. Dobbs and the wonderful medical team that will be in the operating room with Cliff tomorrow morning.

Please pray that Ross and I remain strong so that we can comfort Cliff.

 

"He performs wonders that cannot be fathomed, miracles that cannot be counted."

Job 9:10

St. Louis Zoo and a fun afternoon!

 

Yesterday,
we hopped into the hotel shuttle and spent 4 hours at the Zoo in St. Louis!

IMG_0449

 

Cliff had the time of his life!

 

IMG_0450

 

We have a wonderful zoo at home,
but this zoo was AMAZING!

There were little trains that went all throughout the zoo!

(We may or may not have almost been run over… twice!)

 

IMG_0456

 

There were a bunch of babies there!
We watched this mama and baby elephant for EVER!
They were just soooo cute together!

 

IMG_0470

 

Then it was time to pet the stingrays and sharks!
Cliff is fearless and couldn’t wait to slide his hand down the slimy back of a big stingray!

 

IMG_0492

 

Ross was just as excited!

 

IMG_0504

 

…Ok, Ok, I was too!

 

IMG_0512

 

This little shark really liked Cliff!
He stayed right by Cliff the entire hour we were there!

 

IMG_0517

 

Even Hollis got in on the shark and stingray action!

 

IMG_0520

 

It took about 20 minutes to convince Ross and Cliff that there was more to see!
They so would have stayed there all day!

 

IMG_0523

 

Cliff got up close with the Apes!
And laughed wildly when they started to wrestle each other!

 

IMG_0528

 

Cliff was SUPER excited to see the penguins!
They were literally RIGHT there… like we could have touched them!
(Ross was like a kid in a candy store… he has this strange love for penguins…)

 

IMG_0539

 

They were so neat to see, but it was FREEZING in there…

 

IMG_0544

 

We had to warm up, so we went back outside where we spotted a baby camel and his parents!

 

IMG_0551

 

Aren’t zebras so pretty?!

I love them!

 

IMG_0553

 

The Boy had a blast chatting with the monkeys too!

(monkeys seem to really like Cliff… hmm…)

 

IMG_0567

 

They seemed to be as interested in us as we were them!

 

IMG_0572

 

Seriously, who knew there were so many types of monkeys?!

I think they have EVERY kind at the St. Louis Zoo!

 

IMG_0584

 

After the Zoo,
Ross taught Cliff how to “ride” his walker down hills!

…Boys will be boys!

 

IMG_0593

 

This Boy is amazing.
His positive attitude and outlook on life is simply beautiful.
He continues to smile through every challenge he he is faced with and embraces life like no one else I have ever met.
He is truly a miracle.

 

IMG_0590

 

After a fun time at the Zoo and learning new walker tricks,

we all crashed for a few hours!

 

IMG_0614

 

As soon as we all woke up,
we went straight outside to stroll around and find a bite to eat!
The weather was pure perfection and we had to soak up every second of daylight left.

 

IMG_0618

 

As we strolled up and down the sidewalks, dodging people who were in a hurry and weaving in and out of tables at local sidewalk restaurants,

we soaked up the energy. 
The craziness of the hustle and bustle, the way we all jumped every time a horn beeped, the smells of each restaurant we passed  and how people who heard us talk stopped us to ask which part of the South we are from were the perfect distraction for all of us.

 

IMG_0621

 

After strolling nearly 7 blocks and eyeing the food people were eating at about 50 restaurants, we settled for Tom’s Bar & Grill, which was back where we started.

Sidewalk dining at it’s finest.

 

IMG_0619

 

Yesterday.
A day full of happy memories and lots of love.

A day where our fears and anxiety were replaced by the buzzing energy that flows through St. Louis.
A day of exploration and distraction.

 

Today we meet with the Orthopedic Surgeon to see exactly what he will be doing to Cliff on the operating room tomorrow.
I will post an update as soon as I can!

 

Please continue to pray for Cliff.
We appreciate your support so much!

Today, we are clinging onto this bible verse as Cliff’s surgery draws closer and closer:

 

Do not fear, for I am with you; do not anxiously look about you, for I am your God. I will strengthen you, surely I will help you,
surely I will uphold you with My righteous right hand.
Isaiah 41:10

Dr. Park & Physical Therapy

 

 

Yesterday,
Cliff was able to show Dr. Park how awesome he is doing!

Dr. Park was happy with Cliff’s progress!

 

Walking with cerebral palsy

 

He evaluated Cliff thoroughly and Cliff was so excited to show Dr. Park how much progress he made since we saw him last year. 

 

Walking with cerebral palsy

 

Dr. Park told us that he thinks Cliff’s hamstrings are a little tight and they are the reason he is walking on his toes.

(Which is exactly what his Special Needs Pediatrician and PT said at home)

 

Walking with cerebral palsy

 

Then we asked THE BIG question…

“Do you still think Cliff will walk independently?!”

After Cliff passed the “raising both feet to get his badge test” aka flexed both feet,

Dr. Park said “Cliff still has a chance to walk  independently!”

 

Walking with cerebral palsy

 

He stressed to us that Cliff will still have the ability to develop his gross motor skills for 4 or 5 more years.

Having the ability to walk totally on his own may take a little more time.

Overall, Dr. Park was pleased with Cliff’s progress and we will come back in one year to visit him again!

Oh yea…

He also said that Cliff relies WAAAAAY too much on his walker.

That Cliff has mastered using his walker, it is no longer challenging him and is ready to move onto canes so that he can be challenged!

So starting today, Operation CLIFF WALK WITH CANES is underway! 

 

Walking with cerebral palsy

 

After meeting with Dr. Park,
Cliff had a PT evaluation!

 

Walking with cerebral palsy

 

All of the things he was unable to do or scored a 1 on before the SDR,
Cliff mastered this time!

 

Walking with cerebral palsy

 

The Physical Therapist was thrilled with Cliff’s progress!

He did things like walk up steps…

 

Walking with cerebral palsy

 

… and back down again!

 

Walking with cerebral palsy

 

He even showed Ms. Erica how he can stand up from sitting on a bench for a few seconds!

 

Walking with cerebral palsy

 

Erica says that she thinks Cliff will walk independently!

(Those words mean SOOOOO much to Ross and I)

 

Walking with cerebral palsy

 

I am not too sure what Cliff scored on the evaluation today,
but I do know that Cliff blew that evaluation out of the water!

 

We are so thankful that Cliff is able to have access to these wonderful resources here in St. Louis. Ross and I thank the Lord for providing such wonderful Doctors and Physical Therapists for Cliff.

Cliff still has a long way to go,

but we KNOW he will walk independently one day!

 

God is so wonderful.

We are so thankful!

 

Thank you all for your prayers, messages and sweet comments.

They mean more to us than you will ever know.

Having YOU support us and praying for us keep us going through the tough times!

We are so thankful for you!

 

Today,

we are sharing this Bible Verse with Cliff:

 

I can do everything through Him who gives me strength.
Philippians 4:13

Hello Again, St. Louis!

 

Last weekend was by far the craziest weekend we have had in a LONG time…

but we all survived and at 5:00 a.m. Sunday morning, we hopped on a plane to St. Louis!

(For those of you who are new to JIAD start here at the bottom)

The best thing about flying that early is being able to watch the sun rise.

This is what I imagine when I think of Heaven!

Seriously, it was breathtakingly stunning.

 

012

 

The Boy enjoyed playing his “iPad” while Ross and I closed our eyes and sat in silence. Embracing a moment of peace and quiet. 

 

016

 

Before we knew it,

we were THERE!

And once again as we rounded the corner and The Children’s Hospital was in sight,

I am pretty sure I heard the Choir of Angels.

Yep.

It’s still magical to us.

 

023

 

Cliff was thrilled to be at HIS hotel and I am pretty sure they would hire him to man the elevators if he asked for a job.

 

039

 

We were all so thrilled to be in St. Louis!

It will always be our favorite city because it’s is where Cliff’s legs were “fixed”

and everyone here embraces Cliff beautifully.

Sometimes I wonder if his walker is invisible here.

 

048

 

Ross dug through my purse and found some change then taught The Boy about making a wish when he tossed coins in the fountain.

It was such a sweet moment that I will never forget.

 

072

 

Then a sweet lady stopped and said “give me that camera and get in that picture with your family!… Ok, everyone say CHEESE!… one, two, THREE!”

 

078

 

Then we found The Cheesecake Factory where we all ate WAAY to much!

 

082

 

The highlight of my morning was this:

 

IMG_0444

 

The highlight of Cliff’s morning was this:

IMG_0403

 

Yep.

Cliff raided The Disney Store where he took full advantage of the fact that Ross and I both have “looming surgery guilt” and we just couldn’t say “no!’”

 

087

 

We spent the afternoon with Dr. Park and at physical therapy!

Cliff did great and we can’t wait to share with you what Dr. Park said!

Check back in the morning for the details on our appointment with Dr, Park and how Cliff blew through the PT evolution!

(I have a hungry boy to feed, so we are off to dinner! )

The Boy does STEPS & a surgery announcement!

 

 

In our backyard are these steps that have always been a source of fear and anxiety.

Until now.

The Boy decided to tackle the steps…

and he was thrilled to learn that he CAN walk down them! 

These pictures speak louder than any words I could try to type.

So enjoy!

 

DSC_0001

DSC_0007DSC_0014DSC_0017DSC_0021DSC_0028DSC_0038DSC_0064DSC_0066DSC_0068DSC_0070DSC_0072DSC_0074DSC_0079

 

No matter how many times he goes down the steps,

his pride, excitement and pure elation is so big I just want to bust out in song and dance for him!

It’s beautiful.

I am so thrilled that saying “YES YOU CAN!” a million times is finally paying off!

Look what Cliff CAN do!

 

 

Today,

Ross, Cliff and I will be running through airports,
traveling back to St. Louis.

We will have a crazy week of appointments, physical therapy and

on May 10th, Cliff will undergo another surgery.

Starting today, this blog is dedicated fully to Cliff and his journey in St. Louis.

Get ready for daily updates on Cliff and all that he is doing for this entire week!

Please keep him in your prayers!

 

(To see where Cliff’s St. Louis journey began, go here and scroll to the bottom)

 

 

Here is the bible verse I am taking with us to St. Louis:

 

But by the grace of God I am what I am, and his grace to me was not without effect. No, I worked harder than all of them —yet not I, but the grace of God that was with me.

1 Corinthians 15:1

Baby Update {weeks 23-25}

I am 25 weeks pregnant today!

It is crazy to think that I went into labor with Cliff one week from now.

Hopefully,
Hollis is planning on camping out for at least 12 more weeks!

She is moving a lot, which is the best feeling in the world!

 {23 weeks}

24 weeks 5 days

{24 weeks 5 days}

I had another ultrasound this week to check Hollis’s growth.
Thankfully she is growing and looks very healthy!

Here is a sweet profile picture that makes me think she may look like Harper:

24.5 wks

{24 weeks 5 days}

And this week she decided to let us see her sweet little face:

24.5WKS_3

{24 weeks 5 days}

When she switched over to 4D,

I decided Hollis looks more like Cliff….

Who knows!

24.5WKS_4

It was so neat seeing Hollis practice nursing and moving so much!

Here are her little feet:

24.5WKS_6

She is still head down and if she is anything like Cliff and Harper,
she will stay that way for the remainder of her time in my belly!

24.5WKS_7

Hollis weighs 1 pound 10 ounces!

With all of her measurements combined she is in the 52nd percentile!

We are so thankful that everything looks so great!

When it rains, it pours. {Harper’s Surgery}

 

I noticed an abscess on Harper’s hiney.
Yes, it is Staph…MRSA to be exact.
Yes, she had this same infection and surgery last fall.
I immediately called her pediatrician and off to the Dr we went.
One look at her boo boo and before I knew it, we had a one way ticket to the Children’s Hospital.

 

IMG_0381a

 

I called Ross laughing because you can do two things in this situation:
Laugh or cry.
And I choose to laugh.
Our flight departs in less than 36 hours for St. Louis where Cliff is scheduled to have surgery next week, I have not even started to pack for St. Louis, the house is a complete wreck and my to-do list is a mile long, but none of it matters until Harper is taken care of.

 

She was thrilled to get a “pwetty bacelett!”

 

084

 

And we passed the time with lots of rocking, singing and most importantly laughter.

 

117

 

Secretly I was dying inside because I knew The Girl was going to the OR at some point
throughout the night or first thing in the morning.
These moments of heartache and fear are when I try my best to hand everything over to the Lord.
He is so wonderful, loving and kind.
He knows how to help a mama get through tough times and He comforted me so I
could comfort Harper.

 

121 copy

 

Getting her IV was awful.
She screamed in pain and all I could do was sit there and watch them stick her with a huge needle.

 

123

 

The worst part is that they had to stick her twice.

 

132

 

Once we recovered from the trauma of the IV placement, Daddy arrived.
(He always arrives after the worst is over… if only I could having timing like that!)

 

Who knew running back and forth, crashing the IV pole into everything possible could be so much fun?!

 

Harper 2nd Surgery

 

Exhausted from her evening run,
The Girl snuggled with Daddy.

 

145

 

At 12:30am, as soon as we were all finally asleep, the nurse came in and told us it was
time for Harper to go to the OR.
So we took a little midnight stroll…

 

IMG_0383A

 

The surgery went great and we were loving on Harper before we knew it!
She was pretty grumpy when she woke up and was also in a little pain, thankfully her nurses were awesome and stayed on top of everything in hopes that we could all get a little sleep.

 

IMG_0384a

 

Getting any sleep in the hospital is like putting a toddler in a room full of open paint
cans and expecting them not to make a mess.
So we pulled an “all nighter” and had no fun, crazy stories laugh at in the morning.
But we were all still smiling, because like I said before…
You can laugh or cry. And I choose to laugh through the crazy times.

 

IMG_0385a

 

Harper is sore today,
but she is in great spirits.

 

180

 

Daddy ran out as soon as the sun came up and got us some “Chick a Lay!”
FYI – that makes everything better.

 

188

 

The amazing Surgeon and Nurses are working hard to get us out of here today so we can catch our flight to St. Louis in less than 24 hours!
Harper will stay home with my amazing sister and wonderful mom.
We are so thankful to have such a wonderful Children’s Hospital so close to us!

 

194 copy

 

 

God is so, so, SO good!
We are so thankful!

 

My soul finds rest in God alone; my salvation comes from him. He alone is my rock and my salvation; he is my fortress, I will never be shaken.

Psalm 62:1-2

Related Posts Plugin for WordPress, Blogger...